Saturday, February 12, 2011

OUR WARRIOR WEARRIES

Our beautiful Pink Chemo Warrior has surrendered the battlefield, but continues to fight. Over the last few weeks Roni’s condition has deteriorated, but she soldiered on. She is now too weak to stand and spends most of her time with her eyes closed, but not necessarily asleep. She does join conversations but is very tired, it has been a tough two and half year, 24 hour per day, 7 day a week struggle. With courage, dignity, and honor she waged a very personal war against this unrelenting killer. Our country does not award medals to these types of heroes, but Roni often commented that the love and admiration of her friends and family were compensation enough. She is an inspiration to so many.

Modern medicine does not have the tools to save our hero.

Last week when the palliative care doctor came to visit she suggested that Roni’s body was shutting down and it was time. I thought she was off her nut. She asked Roni if she was ready to quit chemo and received an adamant NO in reply. A day or so latter Shannon led me to a cancer website where Roni’s symptoms were laid out in the section about the final stage of cancer. My beautiful, loving, always sassy Irish lass is losing the battle.

I recall back when it was my mother’s time; I was the only sibling nearby. I went to hospital where Mom had lived for 12 years. Her mind had left years ago, her eyes no longer functioned and her hearing was likewise impaired. She had wasted away to about 60 lbs. Mom was a few months short of turning 90. I sat with her and held her hand for several hours and as the sun was setting I mustered up the courage to tell her it was ok for her to go on, we would be ok. I kissed her cheek and a single tear slipped from her eye. I was at peace with the situation. One evening last week after the house was quiet and we watch TV in bedroom I turned down the volume and told Roni, “It is OK for you to go, I will be fine. I will miss you terribly, but I’ll be OK.” Roni looked back at me with a little smile and said, “I love you.”

Roni had a close friend, Rae, visit Wednesday’s night but mostly kept her eyes closed, she occasionally struggled to ‘wake-up’ but each attempt was short-lived. At bedtime Roni struggled to swallow her evening pills and Thursday morning was worse. The palliative care doctor, nurse and a social worker arrived Thursday morning and switched her meds to injections.

Roni and I both have Living Wills and had discussed in depth what our personal choices are. At the onset of the metastasised cancer, having been told that there is no cure, Roni also completed and sign a Do Not Resuscitate Order. She asked to be allowed to die at home and so the doctor has also signed Intent to Die at Home Form. Her intent and desires are clear to me…no heroics. After a short discussion with the palliative care team I decided to cease chemo therapy and continue on with only end of life care. I thought my heart was being torn from my chest, but I am comfortable with the decision and her children agree with me, it is Roni’s time. Nature will be allowed to run it course.

Roni’s pain is well controlled and she is resting comfortably. She is capable of having visitors, in fact we would like people to come and talk with Roni. She can hear and understand and responds both verbally and with body language. She likes to hold hands. Perhaps you can share a memory, certainly a hug and even tears. These will all be a comfort to both Roni and us. Please, at this point if you have a cold, cough, etc. stay away. Finally, as Megz posted previously, this may not be the Roni you knew. This is a woman with final stage cancer, prepare yourself. Please phone first and we’ll tell a good time.

I want to thank all of Team Roni, you have all been so supportive of Roni and her loved ones. I also express my gratitude to Dr. Paul Klimo and the oncology team at Lions Gate Hospital, you gave my beloved more quality time, and I can’t thank-you enough. A very special thank-you to Roni’s children. Megz, Pat and Shanny; your love and support have kept us soldiering on, your all have your Mom’s fortitude. A super special thanks to Shannon; you have been a Godsend.

Your thoughts and prayers, visits, phone calls, cards and flowers are all appreciated. As Roni requested we will be doing a small memorial garden in the backyard, complete with bench should anyone wish to visit, so you may choose to sends seeds or plants for that. I believe we are a hardiness zone 8a.

Brian

34 comments:

Anonymous said...

Beautifully said Brian. Donna

Anonymous said...

I'm weeping as I read this, both with sadness that this world is losing a very special person, but also with gratitude that many of us have been blessed by Roni's life in ways that are as numerous as the grains of sand on the beach. Roni's spirit reminds me so much of my own mom's - the same kind of fight and determination.

I pray that your friends will surround you like never before and their strength will sustain you all during this time.

Mavis

Diana DeMille said...

Difficult for me to comment, Roni and Brian. Tears streaming down my face, Roni, you have been a Blessing for us. Always, always Roni will be tucked into our memories and hearts. You have LIVED!!, and you have FOUGHT, you have embraced your loved ones (both Family and Friends) and are our symbol of bravery and love. Thank you, Roni. Love and prayers from Diana.

Rae Chow said...

Although this post has been expected, it does not make it any easier to read or reply. Roni, thank you for being a friend to me and my family. I have learned so much from you and will always carry these lessons with me for the rest of my life. You have taught me to forgive, to move on, to fight, to lead by example, to smile, to volunteer, to be there for others. You will leave a huge void in this world. Now that you have one foot in this world and one in the next, please know that we will all be okay, and will look for your guidance and love from above.while it is hard to lose you, it is even harder to watch you wither away. I have so many memories of you, and the good you have done. As Patrick said, don't cry because it is ending, cry because it happened..... I love you girlfriend, Always, Rae <3

Scunc said...

Well written, Brian. I'm sorry for your loss. For ALL OF OUR loss. I hadn't seen 'Ca for about 5 or 6 years, so I am grateful to have had the opportunity during my visit to BC this past December, and be able to sit and talk for a while with her and Patrick. Patrick, you've become such a quality young man - someone your mom is VERY proud of! "Warrior" is such a great monicker! She did her part to fight cancer, even before she had it, and continued her part to get the word out, and to raise money, right to the end! She gained a growing following and is a true heroine! She'll remain with all of us that she's touched through her life for a long time!My best wishes to her and her family. -Scott Mitchell

Anonymous said...

It's been said already but worth repeating - Brian every time you write on this blog it's poetry. Like others I read the latest post and am writing this with tears falling down my face.

It's the damn cancer that made Roni & I friends. A mutual friend connected us when I was diagnosed in Jan 2004. We bonded right away. For that I will always be grateful for cancer - I have had the privelege of knowing a beautiful person and got a special friend out of something bad.

My angel friend I know you will still be my angel from the other side. I will miss you. I am so glad to have had you as a friend adn thanks SO MUCH for showing people that no matter what your situation you can still make a difference.

Beyond this I totally concur with Diana's post. Thanks Brian, Meghan and Shannon for keeping us posted. For all of you and Patrick you are in my thoughts. Please give our Warrior hug from "Pink Angel" in PG (Bonnie). Much appreciated.

Fallek said...

Roni, I am so sad that I am not in Canada at the moment and cannot visit with you, hold your hand and talk about our time together. How we both used to take naps in the office, of the lunches we had with our friends at work. You have fought with tremendous courage and I will always admire that and remember that and use your courage to inspire me in difficult times. You have touched so many people in your life and we are all the richer for it. Your life has immense meaning to all of us and will continue well into the future. We will remember you with love and admiration.

all my love to you and your family
Debbie Fallek

Anonymous said...

Roni,I've been thinking of you so much lately, your strength during this ordeal is unbelievable.You truly are an inspiration to all of us !!!
God bless you and your loving family.

Linda

Unknown said...

I know of the pain personally Brother but have few words, many thoughts though.

Anonymous said...

It is so sad to see someone so great leaving, but what will always stay is your spirit with all of us...Roni it was an inspiration knowing you. You have been in my and Juli's prayers everyday, I have not been around and there is no really good excuse for that but I still love you as a friend and I will miss you....Mila

Anonymous said...

What an inspiration you ALL are,and Roni especially, to us, far away in body Facebook Friends but so close to her in our hearts!
How I wish I could have come over the pond to meet her in person,as her fun ways and happy spirit,gave my heart, when I went through a family problem 2 years ago.Her many restaurant recommendations for "When I could make it",her snatched lunch breaks from work to "Chat" to me on Fbook,always ended in giggles for us both! And still she continued her fight,and always had a laugh with me,right up until the last time we spoke and saw each other for the first time, through the marvellous medium of Skype just 3 weeks ago.
Please tell her I gave her love to the beautiful elephants and Giraffe in Kenya last week and I "Took" her with me around the Masai Mara and Samburu camps,and finally down to the white sands,palm trees and blue waters of Mombasa,I "took" her for a swim with me,and swear I could hear her splash and laugh!
I will always remember this lovely lady with love and heartfelt affection.May God bless her and keep you all in love and honour.
More love from her little Facebook friend,Sandy Davenport,over in Portsmouth,England.

katzcarol said...

Brian .. thanx so much for your lovely words again about our Warrior. About 11 months ago I had the great pleasure of meeting Roni face-to-face and finally meeting her loved ones as well, when I drove up from Tucson to spend some time with my friend. I've "known" Roni for a few years through Dancer Cancer and it was an instantaneous click of friends. I've talked with her many times on the phone, ah, but to be in her phhysical presence was so awesome. Even though I could only spend a few days, I am so happy I took the time to come and visit with you all. Thank you, Brian and Megs, Shannon and Patrick for the wonderful care you have given Roni. I know she loves you all, and especially loves the grandbabies. Like everyone else who reads Brian's post, tears are streaming down my face. I'm sad at the thought of losing Roni and not being there to hold her hand and hug her in these final days, but I'm holding that hand and hugging her in my heart, and I always will. She will live on in the hearts of all of us who were honored enough to know her. My heart and prayers go out to you loved ones who are left to go on without her, and who are beside her in these final days. Roni knows she is loved by you all, and I hope she knows how much she has meant to all of us over the years. God bless you all, with love from Carol in Tucson

Anonymous said...

Toni is a lovely lady. You can tell by the people who love her. I too met her through the clinic a year and a half ago. She was a total joy to meet as we laughed through some of our treatments. She never said an unkind word about anyone. As said before your pink angel has given in. What a loss this will be to everyone who has been touched by her. My heart and prayers are with her magnificent family.

Anonymous said...

Roni is a lovely lady. You can tell by the people who love her. I too met her through the clinic a year and a half ago. She was a total joy to meet as we laughed through some of our treatments. She never said an unkind word about anyone. As said before your pink angel has given in. What a loss this will be to everyone who has been touched by her. My heart and prayers are with her magnificent family.

Anonymous said...

I could not stop crying reading this. Brian, thank you for sharing such heartfelt words.

Sending you all love, strength and prayers.

Megan

Anonymous said...

Dearest Shannon, Meghan, Patrick and Brian,
Our hearts are with you all. This was extremely difficult to read, though it was well written. I cannot imagine how difficult this must for the family. I have lost someone very close to me to Breast Cancer, she was not my mother so I cannot even begin to imagine the pain that Shan, Megz and Patrick are feeling right now but like Brian I feel that it is important to tell the ones we love it is alright to let go, to go home and to look back on us now and then. I feel like when someone is a soldier like Roni they are fighting for many reasons but the number one reason is for their family. When it comes to the end of someone’s not just anyone’s but your mother’s life it is important that you tell her that little something you may have been holding back on. Share your secrets and know that she is taking then with her to a better place. Shannon, Meghan, Patrick and Brian, I know many people have said it before but I am saying it again and I whole heartedly believe this, your mom may not physically be here with you but she will always be in your hearts. When you smell the sweet fragrance of a flower garden, your mother is with you. When you see the sun peek through on a cloudy day, she is letting you know she is there with you, and when you feel the warmth of the sun on your back she is guiding you.

“A mother is like an ever-burning candle,
a warm bright ray,
whose light is always there
to help along the way.”
I wish I could be there with you. Please give her a hug goodbye for me and my family. You will all be in our thoughts and prayers.
Love always,
Kristah and The Boggs family

Ardene said...

I can barely see through the tears to type my Friend and I am sure you will Laugh and remember that typing was never my best attribute. I have only one thing to say and that is "I love you very much". I still don't believe that you have given up yet; I know you will fight every step of this last journey and still be smiling. I hope you can give me a few more days to get there PLEASE. I am so very proud of you my friend.

Lindsay C said...

Mom, I love you. It has been quite the fight and you have taken it on with unbelievable strength, dignity and an outstanding sense of humour.

It has been a rough couple of days, but ones that I will look back on with fondness. Our witty banter and contagious laughter would make others jealous (and I too hope I get to shake hands with a fraggle on Mars one day!).

Heaven is getting ready to welcome a new angel and what an angel you'll be!

To Shannon - everyday you continue to amaze me with your strength, courage and compassion. If I end up to be a 1/4 of the woman you are, I will consider myself a lucky woman.

To Meghan and Patrick, my sister and brother - we are a family and you are stuck with me. We are better people because of her and I am here for you, forever.

To Brian - thank you, thank you, thank you. For loving her and being exactly what she needed. We are extremely thankful for your daily support.

I have been fortunate to spend the last few days with her and say what I have needed to say - that I love you, that I will be here for Shannon, Meghan and Patrick and that I love you more than you will ever know.

I am not going to be sad for this happening, I am going to to be happy because I knew you.

I love you.

Your daughter,
Lindsay

Shelley said...

Your families in Victoria are holding you all up in prayer.

Thank you Brian, your post was sad yet courageous.

Peace to you all.

Shelley, Jack and all the kids.

Anonymous said...

I echo the sentiments of the others commenting here, that while we somewhere expected this, Roni, you made us believe that perhaps this would be a battle that would be won. While the battle may be winding down, yours was a strategic one in the war. You've contributed so much to supporting survivors and victims, and their families and to cancer research. You've reminded us all to live life to the fullest, with joy through hardships, and to appreciate what we have and the love of our friends and families (and if success is to be marked by the latter, you've got it in spades!). We should probably not visit as we're all battling some illness, and we all have some variant of it, so we don't want to expose you to the viral soup, but please know that we're sending our love and support to you and your family. Linnea and I prepared her birthday party invitation tonight, and she decided that in lieu of presents, she is asking for donations for cancer research in your honour. Another life touched by you! I am in awe of the sentiments expressed on here-- such poignant words, inspired by an amazing woman and proof positive that your spirit will live on when your body is at rest. With love, and thanks for being a good friend and co-worker. I would much rather this not be our goodbye, but in case it is, I wish you peace.

Tina (and Jeremy, Linnea and Sophie too)

Rain said...

Dearest Roni,
I am so honored to have met you in this lifetime. It pains me to see you go so soon, but I am confident that we will all meet up again some day and dance for joy. I can't wait to see you smile again, to dance, to love. Your love is contagious. Your optimism an inspiration to us all. We will be looking for signs of your presence all the days of our lives. We will be praying for your safe delivery to our Creator. And we will miss you, Roni....more than we can say. But, oh how blessed we are to have known you... Forever your friend, Rain
many kisses, Roni

bev21544 said...

Thanks for the touching update Brian, I really can't say anything more or different than what has already been said. It's pain full every which way you look at it. We wish we could visit, but being in Alberta makes it difficult so we send lots of hugs from all of us including the furry and feathered crew. Love to you all.

Anonymous said...

There is no one I know who has ever fought a more brave battle than Roni. Brian, you and your family have been pillars of strength through this entire battle, but sadly, yes, her time has come. No matter what, we all know that she has not fought in vain. There are hundreds of people who have been touched by her, learned lessons because of her, and remain proud to call her a friend.I am heartbroken for your loss, and will continue to keep you all in my prayers.
Suzanne

Unknown said...

To Brian & Veronica;
I am lost for words...I know this has been a long & terrible fight that is now nearing the end. I genuinely hope that You have found your peace & can look at your future with hope & strenght Veronica...for I believe[& I think you guys do to] that there IS a 'future' ahead...just one that's hard to comprehend untill we're there.
I apologize for not being more supportive in both your tribulations...however; I'm heartened to see thart there has been no shortage of people to support you both thru this.
I too, am no stranger to pain & suffering & because of this familiarity I will not try to claim I know what you're going thru cuz no-one can ever really know this.
I shall be happy to offer some prayers for Ronnie that she be comfortable & un-afraid.
Brian, if there is ANY way I can be of assistance - PLEASE..do not hesitate to call..I know we're not super close...but a brother is a brother & if I can help I will be honoured to do so. Just in case...my ph. No. is - 604-722-5511.
God bless you both Brian & Veronica.......
Doug Wright

Anonymous said...

For coming to the aide of fellow fighters and for uncommon courage and valor in the face of such difficulty, Roni deserves every medal there is - but for this battle, there is only rest and knowing that you ae loved as you have loved. JannahLee

Anonymous said...

Brian , Thank you for the beautifully written update. As I sit here with tears streaming down my face I don't know how to put into words what knowing Roni has meant to me.

She has been an incredible inspiration to me and many others. Everything she has done over the last number of years for the various cancer organizations for which she volunteered has touched so many people. Her willingness to share her experience has helped more people than I can possibly count.

I am very sad that I will probably not get to see her again. Please let her know that I am thinking of her and give her a hug for me.

My thoughts are with the whole family.

Concetta

Anonymous said...

Ronim what a privilege it has been for me to have known you these past 9 years through our online Teaparty sisterhood of "Dancer Cancer". I had the joy of meeting you at LAX for a brief few minutes and of accompanying Carol on our trip to visit you last March. Yes, I met a true pink Celtic Warrior who always inspired all around her. Know that your inspiration will live on in all who had the privilege to know you and to know of your work on behalf of those touched by cancer. The world is a better place because of you, my friend.

My prayers go to Brian, Patrick, Meghan, and Shannon....and to the grand babies.

Go in peace dearest Roni. I'll be talking to you in my prayers.

Mary Margaret (aka Shouva)

Anonymous said...

Roni,
You are an inspiration and a reminder of how important it is to enjoy each day as life really is short! May you find as many friends in heaven as you did here on earth. You will be remembered! Be at peace!

Brian,
Having lost my sister to cancer in 2007 I know that this has been a roller coaster ride for you and the family, may you all take solice in knowning that Roni has left her mark and all of you have too!
Cancer shows us the positive and negative of life. The positive from the people who care, who show thier love and friendship to us and the negative in how distructive cancer can be.

...my thoughts are with all of you!

Gregory

sandra e said...

Thank you Brian for this...Roni is blessed to have you and such a wonderful family.

Roni, I have enjoyed the years together, always told you you inspired me and helped me get through tough times, I'm proud to be your friend and part of your team..Love and Hugs always Sandra E

Anonymous said...

Like Mavis, I am weeping as I write this. I have had the feeling that this was happening in the last few weeks,but I was not giving in to thinking that this would be the end of the battle, even though Roni has fought harder than any person that I have ever know in my entire life. I have never been so impressed with anyone in my life, to see her determination and courage.

I just recently acquired Skype, and not long ago had a great one on one conversation with Roni, whereas before it was just done by messages on Facebook. That is something that I will now always treasure, to have known such a warrior.

Mavis is indeed right, where she says that this world is losing a very special person. I know my life has been enriched by just knowing her for a few short years. Her spirit will live on. I hope that if I am faced with such a battle that I may face it with all the fight that Roni has given.

I know that the love of her family, and the strength that comes from this love, will help you all through this now, as you face what comes next.

Daphne Choquette

Marilyn Dolling said...

Thats a wonderful tribute to our Roni Brian. Beautiful. It took me
to tears.
Hugs to you all xxx Marilyn xxx

Pavliday said...

Brian,

I'm in tears reading this, and even though I haven't been around during Roni's journey, I have read all the posts and blogs, and thouigh I'm saddened for your loss, I applaud you for your stoic and beautiful tribute to a beautiful and very inspiring woman who has made an impact on so many lives.

Please take care of yourself, and don't hesitate to call if you need a shoulder. (remember you were there for me a few years back).

P.

Lynne J. said...

Thank you Brian, for such a beautiful tribute to Roni, the girl who became an inspiration to so many, through words and deeds.

Our Roni has lived life to the fullest, always a whirlwind of activity! What a blessing to so many. She's been a fountain of knowledge - with so many connections and being such an outgoing person, you were bound to learn something new from Roni.

Yes, she touched our hearts and this summer, in the garden, when a rosebud opens, a butterfly flutters by...I will think of you Roni and yes, of course..will plant a new rose bush, to honor my longtime friend.

Love, strength and prayers to Roni's family and all her dear friends who are thinking of her with fondness....Lynne J.

Anonymous said...

You were both lucky to have known such love and courage and I feel honoured to have "known" Roni for last 4 years through Face Book.Such a wonderful lady,so sadly missed but now at peace.
Love to you and all the family,heartfelt sorrow and prayers for you all.
Sandy,(Portsmouth,England)