Alright, well here is the update.
Mom and Brian went and met with the clinical trial nurse on Tuesday, as well as the oncologist to go over everything that could/would/will happen as she goes through the study. Mom had to give a DETAILED list of every type of medication she is on/has taken in the last month as well as when she took it last. Now, when most of us think medication we think prescription medication, however, this is not the ONLY type of medication Mom had to list. She had to list everything from prescriptions to vitamins to over the counter medication-you name it she had to give it. Dr. Pansegrau (the oncologist) had to sign a bunch of paperwork saying that mom was healthy enough to take part in the study and give consent and all that fun stuff. Mom also had to sign one thing giving her consent to take part in the study as well. Maybe it’s just me but does anyone else think it’s a little ironic that the doctor has to sign more paper work than the actual patient?
Mom went in this morning (Wednesday) to have the CT scans and three ECG’s done as well. All of the ECG’s had to be taken back to the cancer clinic right afterwards. The CT scan was a full body scan from Mom’s head to her knees as well as a brain scan (Mom’s hoping the found one :-P) to make sure the cancer hasn’t’ spread to her brain. If in the event that is has, then Mom will not be able to take part in the clinical study (thus the reason for having this test).
Originally Mom was supposed to be going to have an Echo test done on Sept 5, however that has since been changed to a MUGA test. And what exactly is a MUGA test you ask? Well it stands for Multigated Acquisition Scan-a fancy way of saying a test for the heart. Mom will be injected with a radioactive dye and it will highlight every part of her heart.
The bone scan is still scheduled for Sept 2 as planned. Mom has also been booked to get more blood work done at 2pm as well as at 2:45pm on the 8th Mom will be meeting with Dr. Pansegrau for a physical and such.
Mom will also be going to a Therapeutic Touch session on Sept 2. Her and I went to one session back in 2001 (I think) and Mom felt so relaxed afterwards. We are also going to the Look Good, Feel Better Program. This is a program for women who have cancer and is aimed at giving them tips for doing their make-up while having chemo and radiation as well as tips on how to wear the head scarves and turbans.
It is looking like the chemo treatments will start on Sept 10 at 8:30. Mom will find out on the Tuesday (Sept 9) what regime she will be in for the clinical study.
And finally, Mom is going to the Vancouver Cancer clinic sometime next week to go pick up a couple wigs. I am hopefully going with her if we can figure a day that works best!! :)
Mom and Brian went and met with the clinical trial nurse on Tuesday, as well as the oncologist to go over everything that could/would/will happen as she goes through the study. Mom had to give a DETAILED list of every type of medication she is on/has taken in the last month as well as when she took it last. Now, when most of us think medication we think prescription medication, however, this is not the ONLY type of medication Mom had to list. She had to list everything from prescriptions to vitamins to over the counter medication-you name it she had to give it. Dr. Pansegrau (the oncologist) had to sign a bunch of paperwork saying that mom was healthy enough to take part in the study and give consent and all that fun stuff. Mom also had to sign one thing giving her consent to take part in the study as well. Maybe it’s just me but does anyone else think it’s a little ironic that the doctor has to sign more paper work than the actual patient?
Mom went in this morning (Wednesday) to have the CT scans and three ECG’s done as well. All of the ECG’s had to be taken back to the cancer clinic right afterwards. The CT scan was a full body scan from Mom’s head to her knees as well as a brain scan (Mom’s hoping the found one :-P) to make sure the cancer hasn’t’ spread to her brain. If in the event that is has, then Mom will not be able to take part in the clinical study (thus the reason for having this test).
Originally Mom was supposed to be going to have an Echo test done on Sept 5, however that has since been changed to a MUGA test. And what exactly is a MUGA test you ask? Well it stands for Multigated Acquisition Scan-a fancy way of saying a test for the heart. Mom will be injected with a radioactive dye and it will highlight every part of her heart.
The bone scan is still scheduled for Sept 2 as planned. Mom has also been booked to get more blood work done at 2pm as well as at 2:45pm on the 8th Mom will be meeting with Dr. Pansegrau for a physical and such.
Mom will also be going to a Therapeutic Touch session on Sept 2. Her and I went to one session back in 2001 (I think) and Mom felt so relaxed afterwards. We are also going to the Look Good, Feel Better Program. This is a program for women who have cancer and is aimed at giving them tips for doing their make-up while having chemo and radiation as well as tips on how to wear the head scarves and turbans.
It is looking like the chemo treatments will start on Sept 10 at 8:30. Mom will find out on the Tuesday (Sept 9) what regime she will be in for the clinical study.
And finally, Mom is going to the Vancouver Cancer clinic sometime next week to go pick up a couple wigs. I am hopefully going with her if we can figure a day that works best!! :)
4 comments:
Thanks for the update, Megz! Much appreciated!! I'd been waiting on it...
Sounds like you're gonna be more busy once on your 'vacation', Roni, than you were when working!! It'll keep you out of trouble for a while, anyway! =) Remember to check for the 'hot pink' wig when you go - I'm really looking forward to seeing a photo of that on you!
Take care, and talk to you soon!
I vote for the hot pink wig too. It shows that you are one fabulous lady Roni and one that can have a bit of fun with this trying times.
Thinking of you lots
Daphne
Sending hugs
Make that a third vote for hot pink!! I think of you daily and send hugs and wish you strength.
Mavis
YEah I'm kinda partial to pink myself. Maybe cuz I had it twice before... LOL And if you're ever going to dye your hair pink anyone, may I suggest you just shave it off when you're tired of it - so much easier!!
Bonnie
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